Ebb and Flow of Grief

Recently I was told I needed to schedule my grief. Or, more specifically, I needed to set aside time everyday to cry for Luke.  I wasn't sure how to take that piece of advice.  As I look over the last 15 months since Luke died, I can see a huge improvement in how I have handled things.  In the beginning, it took everything I had to get out of bed every day and go to work or do anything around the house.  We ate a lot of grilled cheese sandwiches and mac and cheese.  The kids did the laundry and took out the garbage.  I didn't go back to work until after the kids went back to school, although school for me started the week after Luke’s funeral.

The waves of grief were overwhelming.  At any moment, I would not be able to breath, the weight of the entire world would rest on my chest, the tears would flow; there was no stopping it.  Anything and nothing would trigger these episodes.  It was a horrible way to live.  A week before I was scheduled to go back to work, I got a call on a Sunday morning that the dispatcher scheduled didn't show up, could I come in to work.  I went in, relishing the feeling of the normalcy of work.  Nothing at work changed, the techs were the same, the work was the same, I was alone in the office with the phones and computers.  The day was going fine until I started missing Luke and picked up the phone to call home and talk to him.  The breathlessness and tears came in full force.

Since then, the days of not being able to breathe and the tears have slowly decreased, instead of a few times a day, to once or twice a month.  There are still times that hit me unexpectedly, seeing little boys that are Luke’s age or that look like him.  Seeing a picture or status about him on Facebook or Time Hop.

Now I cry on the way to work, if I get to leave work early, I head to the cemetery before going home and have long talks and tears with his headstone.   I cry before going to bed, silent tears as I get ready, sometimes on more difficult days, sobbing in the shower.

The last week was bad, getting ready for Christmas and missing Luke.  The feeling of despair was weighing heavy on my heart.  I wanted to crawl in a hole and die most days.  It took everything I had to get out of bed and function.  I have noticed it is the days leading up to a holiday, anniversary or other special day that are harder to deal with than the actual day itself.  Last week was our Christmas party at work.  Even though Luke wouldn't have been a part of that in any way, except maybe helping decorate cookies, it was a hard day.  My secret Santa gave me an ornament for each of my kids, including Luke.  That brought on a fresh wave of tears, not only did she remember him, she included him.

There are good days, days when I can laugh, when the kids have fun and are kids again. When the world isn't so dark and dreary, have glimpses of light and air. Days my every thought is not consumed with the loss of my sweet baby boy.

I started this post a few days before Christmas.  On Christmas day, I woke up feeling like a weight had been lifted off of me.  The craziness of the Christmas season was over, I was able to sit back and enjoy my family and our day. 

I have not had so many bad days, but I have had some wild dreams.  Some include Luke, some don’t.  The ones that don't leave me shaking my head, sending a tech to Africa to install cable only to have him get lost while I watched his truck drive along the ocean border. So I hopped a plane and road a pig to find him…

There are still days when I can’t catch my breath or thinking about one thing starts a chain reaction of thoughts and memories that leave me in a puddle. 

We are short-staffed at work right now, so everyone is working more hours and more days, leaving us all on edge.  The lack of sleep and time off isn't helping any. I need to replenish the tissue supply more often than ever right now.

K stepped on glass the other night, bleeding all over my house.  It was obvious fairly quickly that she needed to be seen, so off we went to the nearest hospital instead of Children’s where Luke spent his last hours.  I thought everything was OK until she started crying, having flashbacks of the PICU with Luke.  She spilled her heart as we talked about what could have been and what we could have done differently.  It was a hard lesson in hindsight being 20/20.  We had a good talk about God, and how He knows our entire lives before we are ever born.

The kids and I are surviving; there are more good days than bad days.  But there is still a huge hole in our lives.  That will never change.

So goes the ebb and flow of my grief…..

PTSD

I haven't really talked about how J and K are doing since Luke’s accident.  I try to respect their privacy, especially since I am always telling them once you put it on the internet, it is out there Forever.  But I feel like I should talk about J for this post.  He was diagnosed with PTSD a little over a year ago.  He saw Luke drown in front of him, he tried to save his baby brother and failed.  He saw them sticking Luke with needles and putting tubes all over his little body. He saw them shocking him, he saw the CPR and the doctor’s and nurse’s faces while they worked.  He stood next to me while Luke took his final breathes.  That is a lot for an adult, I can’t imagine what it was like for a 9 year old boy.  From the time Luke was born, he was J’s best friend.  There was NEVER any jealousy on J’s part.  He took his role as big brother seriously.  He was Luke’s best friend, protector, cheerleader and co-conspirator.

After Luke died, I immediately put all three of us in therapy.  Due to insurance constraints, we have had a few therapists…. The most recent is Thelma.  She specializes in childhood trauma and is working on her Doctorate degree in Psychology.  She is the most patient, caring person I have ever met.  She has been good for J and me. 

That said, J and Thelma are doing hard work, talking about the day Luke drowned.  They have been working on that day for the last 2 months.  J finally had a breakthrough Friday and was able to name a feeling, an emotion about that day.  He has struggled with that for the last 15 months.  We are both SO proud of him!  On the dark side though….. This has been very, very hard on him.  He is not handling things well.  My once sweet, huggy, wouldn't hurt a fly child is struggling with anger towards himself, his dad, his sister and me about that day.

I have told him so many times it wasn't his fault, it should be ingrained in his head.  I have told him the same amount of times that his dad did not mean for Luke to get hurt and die, that he made a very bad decision.  J is mad at his sister for not going that weekend, not being there to save Luke.  He is mad at me for making them go with their dad that weekend.  He hasn't said he was mad at Luke, but I wouldn't be surprised if he was, that is a normal part of grief.  Luke left him here and is in Heaven with grandpa and papaw.  Crap, I am kinda jealous about that!

This weekend has been horrible.  There are so many triggers for his PTSD, it is like living in a minefield.  It has been one outburst after another.  He has spent more time in his room calming down than he has in the 3 years we have lived here.

I would appreciate any and all prayers for my kids…..  we have a long road ahead of us.

My Point of View

My Point of View

Written by Jonathan T. Zimmerman

I am Luke’s brother.  I was there when Luke drowned in the Wabash River.  I know exactly what happened and not what my dad thinks and he was there too.  My mom’s blog is all about Luke and how I told her how it happened.  I kinda forgot a few parts of it.  Like about the part where I was in 6 feet of water and if I wasn't in water, I would have had a concussion because I slipped on a rock and I floated to the bottom.  Which is where I found Luke.  So I tried to pick Luke up on my back, and if you have ever tried to pick up a kid in water, it is impossible, so I fell in again. And then, I finally got the strength to get out of the water and yell and cuss a little under my breath at my dad. (Sorry about that Mama.)  Anyways, I finally got out, ran up to my dad, he was busy playing games on his phone, I had to get his attention by getting out of the water, getting up as far as I could on the ramp, and yell at him.  It took about 30 seconds for him to realize what was going on.  And I yelled Thomas.  He finally went and got Luke out of the water. 

I told dad to give me his phone and I called 911.  They came, and then I called my mom.  When the fire trucks got there, it was weird.  I had never seen that many cars in the same place at the same time.  I could hear them pumping on Luke’s chest.  I once heard them yell he is not breathing, and a paramedic ran at him and had these little things and shocked him.  Then they put him in a fire truck and ran.  There wasn't enough ambulances because a trailer fell into the river. 

A policeman took me to the hospital, this was the third time I got to ride in a police car and I wasn't arrested!  At the hospital, I saw a whole bunch of tubes sticking out of Luke’s body. And I got free food.  I saw a whole lot of doctors.  They were shocking Luke.  They were saying clear.  I was outside the room with my dad.  I felt horrible.  Because it all happened so fast.  I didn't feel scared, just horrible.  

Friday Night

Tom came.  On Friday night, after K asked to see her dad, he came.  My mom was here, Thelma (one of our new therapists, she picked Thelma from Thelma and Louise.) J was here.  It was awkward, tense and stressful.

He sat in the corner of the living room, I sat in my chair, K, grandma and Thelma sitting on the couch.  K tried and tried pushing his buttons, trying to get some kind of reaction.  Telling him of the last year, how hard things have been, how much she has struggled.  He sat, nodded and smiled.  There was no reaction.

J talked, played on his dad's phone and told him about his last year.  He skirted over the hard stuff.

The tension kept getting thicker.  The kids were sent outside to play.  Grandma went first.  18 years of words bottled up for so long were finally let loose.  Lines were drawn, the gauntlet thrown down.  When the steam ran out, I started.  While you have destroyed our family twice now, you go about your business, living your life like nothing has happened.  I am left to pick up the pieces, to put our kids back together again.  I blame myself for Luke's accident, J blames himself, K blames herself.  What responsibility do you take?  Excuses, might as well be crickets.  More excuses, no responsibility.  I am not surprised.  K appears indifferent, but I know her heart is breaking.  She wants to be a daddy's girl, and I have failed her in that.  I gave her a dad who has no idea what a precious gift she truly is.  J only knows how to relate to him with sports, but J is not a sports person.  Remind Tom of that.... anger seethes, face turns red, hands yank on fingers and pants.  Nothing has changed.  Nothing will ever change.

Have you been to Luke's grave?  Have you seen his stone?  If you are going to see it before it gets dark, you should leave now.

Kids in hives, stress of the weekend finally coming out.  Not able to say what needed to be said, manifests itself in their little bodies.

I can tell my kids all day and night dad is not going to change, he will always be like that.  But they will have to learn it for themselves.  I won't keep them from a relationship, but the rules have changed.