I make people uncomfortable.

I make people uncomfortable.  I.  Make.  People.  Uncomfortable.  My life or my situation makes people uncomfortable.  I am the mother of a lost child.  I am the mother of a child who died too young.  If it can happen to me, it can happen to other people.

People are scared to talk to me about my child who died.  They are afraid they will make me cry.  They are afraid they will cry.  Maybe my loss reminds them of a loss they have had in their lives, something hidden and buried and tries to break free when reminded of my loss.

Maybe they don’t know what to say, afraid of saying the wrong thing, so they say nothing.  They ignore posts on social media, they pretend nothing has changed.

This past weekend was Luke’s 9^th birthday and Mother’s Day.  It was a rough weekend.  A friend, “C” actually shared a Facebook Post about talking to grieving moms, she said it helped her to see that saying anything is actually comforting and helpful. You can read the article here. This is how to stop the world 

I have an amazing group of online friends I met years ago in a group called Spals.  They have called, send cards and flowers and checked in regularly to make sure the kids and I are OK.  They remember every holiday and anniversary.  They too are mothers of kids in heaven.  After we graduated from Spals, most of us not planning on having any more Spals babies, we kept in touch by a new e-mail group and now by Facebook and texting.  There have even been a few “Surprise” babies.  It is hard to believe I have known some of these women for 15 years!  They even forgive (I hope) my lack of communication when I just can’t talk about things and my rambling, long confusing posts when there is no one else to talk to.

I spent part of the weekend being sad and frustrated more people in my off-line life didn’t recognize Lukie’s b-day.  It seemed besides “C”, everyone who posted or said or did something to remember Luke has lost a child in one manner or the other.

Today it occurred to me that maybe the people whom I was disappointed in were hurting too.  Maybe my loss, maybe Luke’s dying reminded them of something they have buried so deep they don’t even realize it is still hurting.  They deal with my hurt by ignoring it, brushing it under the rug, going on with life as usual because to acknowledge my pain would be the catalyst that brought their own pain rushing back to the surface.

To everyone who acknowledged Luke’s birthday Friday, Thank You!  To the people who find it too hard to think about….. I am truly sorry for your pain.  I pray you find the strength to deal with whatever is hurting you.

Friday Night

Tom came.  On Friday night, after K asked to see her dad, he came.  My mom was here, Thelma (one of our new therapists, she picked Thelma from Thelma and Louise.) J was here.  It was awkward, tense and stressful.

He sat in the corner of the living room, I sat in my chair, K, grandma and Thelma sitting on the couch.  K tried and tried pushing his buttons, trying to get some kind of reaction.  Telling him of the last year, how hard things have been, how much she has struggled.  He sat, nodded and smiled.  There was no reaction.

J talked, played on his dad's phone and told him about his last year.  He skirted over the hard stuff.

The tension kept getting thicker.  The kids were sent outside to play.  Grandma went first.  18 years of words bottled up for so long were finally let loose.  Lines were drawn, the gauntlet thrown down.  When the steam ran out, I started.  While you have destroyed our family twice now, you go about your business, living your life like nothing has happened.  I am left to pick up the pieces, to put our kids back together again.  I blame myself for Luke's accident, J blames himself, K blames herself.  What responsibility do you take?  Excuses, might as well be crickets.  More excuses, no responsibility.  I am not surprised.  K appears indifferent, but I know her heart is breaking.  She wants to be a daddy's girl, and I have failed her in that.  I gave her a dad who has no idea what a precious gift she truly is.  J only knows how to relate to him with sports, but J is not a sports person.  Remind Tom of that.... anger seethes, face turns red, hands yank on fingers and pants.  Nothing has changed.  Nothing will ever change.

Have you been to Luke's grave?  Have you seen his stone?  If you are going to see it before it gets dark, you should leave now.

Kids in hives, stress of the weekend finally coming out.  Not able to say what needed to be said, manifests itself in their little bodies.

I can tell my kids all day and night dad is not going to change, he will always be like that.  But they will have to learn it for themselves.  I won't keep them from a relationship, but the rules have changed.

Memories

Sometimes my memories of Luke are so strong I can feel him leaning on me.  When I sit down to do homework, all of a sudden I will feel him leaning on my arm, asking how much longer because he wants to play on the computer.  I will see him running down the hallway and hear his silly giggle.  Our home is full of Luke memories, there is no place to hide from them.

I struggle with loving the memories that feel like he is here with wondering if he really is hanging around.  In my soul, I know my baby is safe in Heaven, surrounded by family and friends who went before him.  He is probably making the angels crazy trying to talk them out of their wings and swords.  But my heart and sometimes my mind want him here with me, even in spirit form.  What if he gets a day pass to come visit us, what if the goosebumps really are Lukie hanging on my arm or giving me a hug?

The past year has been the worst year of my life.  The kids still struggle with the loss of their brother and best friend.  J has PTSD and more anger than should ever be bottled up in a little boy. K struggles with guilt for not going that weekend and anger.  We have new counselors, yay insurance....  They have been good though.  We had Snap, Crackle and Pop at first because I fought to get them.  They knew the kids, they knew me, and most importantly, they knew Luke.  The new counselors are brand new and have experience and specialized in Traumatic Grief and PTSD.  I think they are going to prove to be invaluable in our future.